Privacy

Your specimens and health information will be available to researchers at the Dana-Farber/Harvard Cancer Center who have approval from the DFCI Institutional Review Board to use your samples and health information for research that is conducted under this cancer research study. Your specimens may be shared with other places, such as the institutions that may conduct DNA sequencing. No information that could identify you will be sent with your specimens. In addition, if you agree, we will share your results with central data repositories (such as the National Institutes of Health), which may share information without your permission. Your name or other directly identifiable information would not be provided to these central repositories.

We will take measures to protect the privacy and security of all your personal information, but we cannot guarantee complete confidentiality of study data.

Federal law requires that DFCI protect the privacy of the information that identifies you. If you agree to participate in this study, you are authorizing the researchers at these institutions to access and use your private information. Because the research will be ongoing, your authorization will not expire unless you withdraw it in writing.